Families Voices is convening a focus group to understand the barriers families encounter in navigating the healthcare system for a child with Spinal Muscular Atrophy (SMA) or Duchenne’s Muscular Dystrophy (DMD) when they are seeking treatment, peer support and local resources.The Focus Group will take place on: Tuesday February 23, 2021 from 3 to 4:15 ET pm; 2 to 3:15 pm CT; 1 to 2:15 pm MT; 11am to 12:15 pm PT. If interested, please complete the survey at https://www.surveymonkey.com/r/DMD_SMA by 9 pm ET on Monday February 15, 2021.

The focus group will be virtual, in English, and will last 75 minutes. The information learned during the focus group will be shared with an anonymous funder. Your name will not be shared or reported. Participants will receive a $125 stipend in recognition of their time.

Eligibility:

• Must be a parent/caregiver of a child or young adult diagnosed with SMA or DMD.
• Individuals over the age of 18 with a diagnosis of SMA or DMD are also welcome to apply.

See the flyer below for more details.

Draft focus group flyer SMA & DMD